Dr. Kaye was awarded a P3G CORE focussing on issues raised by data sharing at a global level, between biobanks, and within large collaborative projects. Of particular interest was the use of GWAS and moving to next generation sequencing, with the twist that these give to perennial issues such as consent, identifiabilty and feedback.

Project Publications

1.      Heeney C, de Vries J, Hawkins N, Boddington P, Kaye J Assessing the Privacy Risks of Data Sharing in Genomics (accepted by Public Health Genomics October 2009)

2.      Kaye J, Boddington P, de Vries J, Hawkins N, Melham K, Ethical Implications of the Use of Whole Genome Methods in Medical Research European Journal of Human Genetics advance online publication 4 November 2009; doi: 10.1038/ejhg.2009.191

3.      Hawkins N, de Vries J, Boddington P, Kaye J, Heeney C, 2009 Planning for Translational Research in Genomics Genome Med 2009, 1:87doi:10.1186/gm87

4.      P3G Consortium, Church G, Heeney C, Hawkins N, de Vries J, Boddington. P, Kaye J., Bobrow M., Weir B., 2009 Public Access to Genome-Wide Data: Five Views on Balancing Research with Privacy and Protection. PLoS Genet 5(10): e1000665. doi:10.1371/journal.pgen.1000665

5.      Kaye J, Biobanking Networks - What are the Governance Challenges? in Kaye J & Stranger M, (Ed) Principles and Practice in Biobank Governance (Ashgate December 2009)