Research at HeLEX increases understanding of how the use and impact of innovative technologies in health can be accommodated within existing legal and governance frameworks, and the extent to which such frameworks may need to evolve.
Our research is embedded in scientific practice ranging from whole genome sequencing to stem cell development and biobanking. We specialise in practical solutions, developing best practice and new forms of project governance by being integrated in cutting-edge scientific projects from conception to dissemination. Our advice is based upon evidence-based research, academic scholarship, ethical and legal analysis and experience and understanding of emerging trends in medical research. We use this research and knowledge to provide advice, support and teaching, and as a basis for input into policy deliberations.
Our current international research focuses on the governance of research infrastructures such as biobanks, information law, privacy, data-sharing frameworks, global governance, personalised medicine, and translational research.