Professor Jane Kaye:

Teare, H. J. A. , Prictor, M., J Kaye and Kaye, J. , 'Reflections on dynamic consent in biomedical research: the story so far.' (2020) European journal of Human Genetics

J Kaye, Prictor, M.,, Huebner, S. and Teare, H. J. A., 'Australian Aboriginal and Torres Strait Islander Collections of Genetic Heritage: The Legal, Ethical and Practical Considerations of a Dynamic Consent Approach to Decision Making.' (2020) Journal of Law, Medicine and Ethics

J Kaye, de Neiva Borba, M., , ., Hoppe, N., Garani-Papadatos, T., Negri, S., . . . Phillips, A. , Joly, Y. and Rial-Sebbag, E, 'Direct to Participant Participation Country Reports: The United Kingdom ' (2020) Journal of Law, Medicine and Ethics

Prictor, M., Lewis M.A., Newson, A. J. and J Kaye, 'Dynamic Consent: An Evaluation and Reporting Framework' (2020) Journal of Empirical Research on Human Research Ethics

Hamakawa, N. Kogetsu, A., Nakano, R., Kogetsu, A. and J Kaye, 'Landscape of participant-centric initiatives for medical research in the United States, the United Kingdom, and Japan: Scoping review' (2020) Journal of Medical Internet Research

Morrison, M. , Mourby, M., Gowans, H. and J Kaye, 'Governance of research consortia: challenges of implementing Responsible Research and Innovation within Europe. ' (2020) Life Sciences, Society and Policy


Dr Michael Morrison:
Genome editing: the dynamics of continuity, convergence, and change in the engineering of life  New Genetics and Society 2020-04-02 | journal-article

Research using free text data in medical records could benefit from dynamic consent and other tools for responsible governance. Journal of medical ethics 2020-05 

Making bio-objects mobile: behind the scenes of a translational stem cell banking consortium   BioSocieties 2020-10-10 

Morrison, M., Mourby, M., Gowans, H., and Kaye, J. Governance of research consortia: challenges of implementing Responsible Research and Innovation within Europe Life Sciences, Society and Policy 2020-12 

Implications of secondary findings for clinical contexts    Elsevier 2020

Miranda Mourby:

A McKeown , M Mourby, P Harrison and S Harrison , 'Ethical Issues in Consent for the Reuse of Data in Health Data Platforms' (2021) 27 Science and Engineering Ethics

M Mourby, '‘Leading by Science’ through Covid-19: the GDPR & Automated Decision-Making' (2021) 5 International Journal of Population Data Science

'Anonymity in EU Health Law: Not An Alternative to Information Governance'  (2020) Medical Law Review

M Mourby and M Morrison Gene therapy regulation: could in-body editing fall through the net?   European Journal of Human Genetics  2020 | journal-article

Morrison, M., Mourby, M., Gowans, H., and Kaye, J. 'Governance of research consortia: challenges of implementing Responsible Research and Innovation within Europe.' (2020) Life Sciences, Society and Policy

Nisha Shah:

Soukup T., Lamb, B., Morbi, A., and Shah, N. et al 'A multicentre cross-sectional observational study of cancer multidisciplinary teams: Analysis of team decision making,' (2020) Cancer Medicine

Soukup T, Lamb B, N Shah and Morbi A and others, 'Relationships between Communication, Time Pressure, Workload, Task Complexity, Logistical Issues and Group Composition in Transdisciplinary Teams: A prospective observational study across 822 cancer cases.' (2020) Frontiers in Communication

Patient Safety Education 20 Years After the Institute of Medicine Report Results From a Cross-sectional National Survey  (2020) Journal of Patient Safety
Arora S, Tsang F, Kekecs Z and N Shah

Dr Heather Gowans:

Morrison, M., Mourby, M., Gowans, H., and Kaye, J. 'Governance of research consortia: challenges of implementing Responsible Research and Innovation within Europe' (2020) Life Sciences, Society and Policy

Dr Sarah Coy:

Morrison, M. , Mourby, M., Gowans, H. and Kaye, J. 'Governance of research consortia: challenges of implementing Responsible Research and Innovation within Europe' (2020) Life Sciences, Society and Policy

Dr Mark Taylor:

Taylor MJ and Paterson JM ‘Protecting Privacy in India: The Roles of Consent and Fairness in Data Protection’ (2020) Indian Journal of Law and Technology 16(1) [In Press]

Prictor M, Taylor MJ, Kaye J, Emery J, Nelson C, Manski-Nankervis J “Clinical Decision Support Systems and Medico-Legal Liability in Recall and Treatment: A Fresh Examination” Journal of Law and Medicine (2020) 28 JLM 132

Taylor MJ ‘”Personal Information” and Group Data under the Privacy Act 1988 (Cth)’ (2020) Australian Law Journal 94(10) pp730-740

Taylor MJ and Whitton T ‘Public Interest, Health Research and Data Protection Law: Establishing a Legitimate Trade-Off between Individual Control and Research Access to Health Data’ Laws (2020), 9(1), 6; https://doi.org/10.3390/laws9010006

Refereed Reports:
Ariadne Vromen, Mark Andrejevic, Nicholas Biddie, Simon Dennis, Paul Garrett, Gerard Goggin, Kate Hannah, Larissa Hjorth, Jolanda Jetten, Deborah Lupton, Mark Taylor, Maggie Walter and Kimberlee Weatherall Changes in public sentiment in relation to data privacy during COVID-19 (Rapid Research Brief produced by Australian Academy of Science, at the invitation of the Minister for the National Disability Insurance Scheme and Minister for Government Services, 2020) 

Genevieve Bell, Mark Andrejevic, Christian Barry, Helen Christensen, Larissa Hjorth, Matthew Hornsey, Jolanda Jetten, Christopher Lawrence, Seth Lazar, and Mark Taylor Motivators for use of the COVIDSafe app (Rapid Research Brief produced by Australian Academy of Science, at the invitation of Australia’s Chief Scientist, for the Minister of Health, 2020) 

Carolyn Johnston:

Johnston C, Sharing children’s health data by health professionals and parents – a consideration of legal duties, accepted for publication Indian Journal of Law and Technology (Article)

Kariotis, T, Ball, M, Greshake Tzovaras, B, Dennis, S, Sahama, T, Johnston, C, Borda, A. (2020). Emerging health data platforms: From individual control to collective data governance. Data & Policy, 2

Prictor, M, Johnston, C and Hyatt, A. (2020), Overt and covert recordings of health care consultations in Australia: some legal considerations. Med. J. Aust. doi:10.5694/mja2.50838

Jansen, M, Irving, H, Gillam, L, Sharwood, E., Preisz, A, Basu, S, Delaney, C, McDougall, R, Johnston, C, Isaacs, D. and Lister, P. (2020), Ethical considerations for paediatrics during the COVID‐19 pandemic: A discussion paper from the Australian Paediatric Clinical Ethics Collaboration. J Paediatr Child Health, 56: 847-851. doi:10.1111/jpc.14946

The Pursuit Regulating medical devices in the ‘Internet of things, Johnston C, Ahn B, October 2020

Megan Prictor and Professor Jane Kaye:

Dynamic Consent: An Evaluation and Reporting Framework J Empir Res Hum Res Ethics. 2020 Jul;15(3):175-186 Prictor M, Lewis MA, Newson AJ, Haas M, Baba S, Kim H, Kokado M, Minari J, Molnár-Gábor F, Yamamoto B, Kaye J, Teare HJA.

Reflections on dynamic consent in biomedical research: the story so far Teare HJA, Prictor M, Kaye J.
Eur J Hum Genet. 2020 Nov 28:1-8. doi: 10.1038/s41431-020-00771-z

Overt and covert recordings of health care consultations in Australia: some legal considerations
Prictor M, Johnston C, Hyatt A. Med J Aust. 2020 Nov 1

Australian Aboriginal and Torres Strait Islander Collections of Genetic Heritage: The Legal, Ethical and Practical Considerations of a Dynamic Consent Approach to Decision Making Prictor M, Huebner S, Teare HJA, Burchill L, Kaye J. J Law Med Ethics. 2020 Mar;48(1):205-217