Biography

Andelka M. Phillips, St Hilda's College and HeLEX Centre.

Research Associate at HeLex Centre, University of Oxford.

Her doctoral research focussed on the regulation of direct-to-consumer genetic testing(DTC). This included a review of the wrap contracts of DTC companies that provide testing for health purposes. Future work will examine the contracts of DTC companies offering non-health related testing. 

Most recently she presented at the SSN 7th Biannual Surveillance and Society Conference held in Barcelona in April 2016 and at the American Federal Trade Commission's PrivacyCon conference in Washington, DC in January 2016.

Andelka has been the General Editor of the Oxford University Commonwealth Law Journal (OUCLJ) for 2014-15 and was also the joint General Editor for Issue 13(2) and stayed on as an editor for issue 15(1).

Andelka was the co-founder of the Medical Law and Ethics Discussion Group.

Andelka was the sole convenor of the Medical Law and Ethics Discussion Group for 2013-14 and 2014-15 and the co-convenor for 2012-13.

She was also the convenor of Oxford Privacy Information Law and Society (OxPILS) Discussion Group for 2014-15.

 

 

Research interests:

Medical law and ethics, information technology law, genomics, contract, data protection, consumer protection, legal history, and jurisprudence.

 

Recent Presentations:

Andelka Phillips, I.S. Mian, and J. Charbonneau, ‘Living in a Panopticon City: the Biological-Geographic-Economic-Social-Behavioural-Physical complex -- people and places under dynamic surveillance’ – paper presented at Surveillance: Power, Performance & Trust (7th Biannual Surveillance and Society Conference) (April 2016).

Andelka Phillips, I.S. Mian, and J. Charbonneau, 'Wake Up and Smell the Coffee! A FLE5SH approach to past, extant, emerging and new technologies … beyond Responsible Research and Innovation' (Edinburgh University, 8th February 2016) (http://www.iash.ed.ac.uk/news-and-events/event/andelka-phillips-wake-up-and-smell-the-coffee-a-fle5sh-approach-to-new-and-emerging-technologies-beyond-responsible-research-and-innovation/)

Andelka Phillips, I.S. Mian and J. Charbonneau, '‘Molecule say ‘hello’ to molecule’: Technological Innovation under the Microscope' Gikii 2015: Living in the Future, Berlin, 2015 (http://www.gikii.org/?p=302)

GenoPri 2015 (The 2nd Workshop on Genome Privacy and Security), San Jose, 21st May 2015 (http://www.genopri.org/program.html)

Invited seminar for University College London (UCL) Computer Science Faculty, UCL, 12th September 2014.

Invited talk for SCL Technology Law Futures Forum - Thursday 26 and Friday 27 June 2014, London. Please follow the link to view an article summarising this talk, (http://www.scl.org/site.aspx?i=ed38110)

 

 

 

Publications

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  • Andelka M. Phillips, I. S. Mian and J. Charbonneau, Living in a Panopticon City: the Biological-Behavioural-Geographic-Economic-Social-Physical-Medical Complex – People and Places under Dynamic Surveillance., paper presented at 7th Biennial Surveillance & Society Conference, “Power Performance and Trust”
  • Andelka M. Phillips, 'Only a click away — DTC genetics for ancestry, health, love…and more: A view of the business and regulatory landscape' (2016) Applied & Translational Genomics
    DOI: 10.1016/j.atg.2016.01.001
    I provide an overview of the current state of the direct-to-consumer (DTC) genetic testing industry and the challenges that different types of testing pose for regulation. I consider the variety of services currently available. These range from health and ancestry tests to those for child talent, paternity, and infidelity. In light of the increasingly blurred lines among different categories of testing, I call for a broader discussion of DTC governance. I stress the importance of shifting our attention from the activities of the most prominent companies to viewing DTC genetics as an industry with a wide spectrum of services and raising a wide variety of issues. These issues go beyond questions of clinical utility and validity to those of data security, personal identity, race, and the nature of the family. Robust DTC testing has the power to provide meaningful clinical, genealogical and even forensic information to those who want it; in unscrupulous hands, however, it also has the power to deceive and exploit. I consider approaches to help ensure the former and minimize the latter.
  • Andelka M. Phillips, Genomic Privacy and Direct-to-Consumer Genetics - Big Consumer Genetic Data - What's in that Contract?, paper presented at GenoPri?15
    Part of the 2nd Workshop on Genome Privacy and Security) and published as part of IEEE Conference Proceedings
    This is a brief position paper providing a summary of current research on the legal regulation of Direct-to-Consumer Genetic Testing (DTCGT), focussing on the contracts used by DTCGT companies. The overall aim of the larger project has been to explore the existing legal mechanims for the protection of the rights of consumers in their sequenced genetic data in the context of DTCGT. There are several areas of law which could be drawn upon to regulate the industry or which may have relevance for the protection of consumers (data protection, medical device regulation, consumer protection, product liability, and human rights). However, the current mechanism governing the transaction between the consumer and company when an individual purchases a genetic test from a DTCGT company is that website’s contract, normally to be found on websites as Terms of Use, Terms of Service, Terms and Conditions, Privacy Policy or Privacy Statement.
  • Andelka M. Phillips, 'Think Before You Click ? Ordering a Genetic Test Online' (2015) 11 The SciTech Lawyer
    Most of us click “I agree” multiple times a day. I normally begin my day by turning on my computer and checking my email. Often my computer will ask me to install software updates. Prior to installation, it will normally ask me to agree to terms and conditions, but how many of us read these documents? The answer is very few. We access a myriad of services online, but very rarely pause to read the fine print in all those clickwrap and browsewrap agreements. I am not saying online commerce is bad—the Internet has made so many things more accessible to so many people— but the use of online contracts is challenging many of the traditional conceptions of what a contract ought to be. My current research analyzes the contracts and privacy policies used by direct-to-consumer genetic testing companies (DTCGT). The overall aim of this project is to examine the current legal mechanisms for protection of the rights of consumers in their genomic sequence data and to suggest possible reforms. However, examining DTCGT contracts has forced me into the depths of online contract law, and this in turn has made me think more carefully whenever I am faced with an option to click away. I now do pause and wonder what exactly I am agreeing to. Most of the time it is more than I bargained for. This article will provide a brief overview of the world of online contracts in the context of DTCGT.
  • J Kaye and Andelka M. Phillips, Background Briefing for EAGDA, paper presented at Wellcome Trust

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Research Interests

Information Technology Law, Contract, Medical Law and Ethics, Genomics, Cyber Security, Privacy and Data Protection, Property Law, Consumer Protection, Responsible Innovation, Intellectual Property, and Legal History.

Options taught

Medical Law and Ethics (FHS)

Research projects