Harriet Teare
Research Leader, RAND EUROPE
Biography
Having left HeLEX at the University of Oxford in 2020, Dr Harriet Teare is now Research Leader at RAND Europe, Cambridge.
Dr Harriet Teare was a Researcher in Healthcare and Policy, contributing to a programme of work addressing Global Access to Medicines (in collaboration with members of the Structural Genomics Consortium, Oxford). She had previously provided research governance and ethical support to the DIRECT project – an IMI-JU funded collaboration exploring stratification in Type 2 diabetes, the Rudy Study – a research network for rare diseases of the blood, bone and joints, and led a work package focusing on consent in the Genetics Clinic of the Future – a Horizon 2020 project mapping the complex challenges that will need to be tackled to introduce genome sequencing more widely into the clinic. Harriet obtained a DPhil in Organic and Medicinal Chemistry from Merton College, Oxford, and previously worked as a Senior Policy Advisor at Cancer Research UK, focusing on policy issues relating to science and research, and public health.
Harriet remains an Academic Affiliate of HeLEX.
Publications
Brunfeldt M, Teare H, Schuurbiers D, and others, ‘Simulating the Genetics Clinic of the Future - Whether Undergoing Whole-Genome Sequencing Shapes Professional Attitudes.’ (2022) 13(2) Journal of Community Genetics 247
Wesolowska-Andersen A, Brorsson C, Bizzotto R, and others, ‘Four Groups of Type 2 Diabetes Contribute to the Etiological and Clinical Heterogeneity in Newly Diagnosed Individuals: An IMI DIRECT Study.’ (2022) 3(1) Cell Reports. Medicine 100477
Haas M, Teare H, Prictor M, and others, ‘’CTRL’: An Online, Dynamic Consent and Participant Engagement Platform Working towards Solving the Complexities of Consent in Genomic Research.’ (2021) 29(4) European Journal of Human Genetics : EJHG 687
Teare H, Prictor M and Kaye J, ‘Reflections on Dynamic Consent in Biomedical Research: The Story so Far.’ (2021) 29(4) European Journal of Human Genetics : EJHG 649
Hamakawa N, Kogetsu A, Isono M, and others, ‘The Practice of Active Patient Involvement in Rare Disease Research Using ICT: Experiences and Lessons from the RUDY JAPAN Project.’ (2021) 7(1) Research Involvement and Engagement 9
Koivula R, Atabaki-Pasdar N, Giordano G, and others, ‘Correction To: The Role of Physical Activity in Metabolic Homeostasis before and After the Onset of Type 2 Diabetes: An IMI DIRECT Study.’ (2021) 64(1) Diabetologia 260
Eriksen R, Perez I, Posma J, and others, ‘Dietary Metabolite Profiling Brings New Insight into the Relationship Between Nutrition and Metabolic Risk: An IMI DIRECT Study.’ (2020) 58 EBioMedicine 102932
Prictor M, Lewis M, Newson A, and others, ‘Dynamic Consent: An Evaluation and Reporting Framework.’ (2020) 15(3) Journal of Empirical Research on Human Research Ethics : JERHRE 175
Koivula R, Atabaki-Pasdar N, Giordano G, and others, ‘The Role of Physical Activity in Metabolic Homeostasis before and After the Onset of Type 2 Diabetes: An IMI DIRECT Study.’ (2020) 63(4) Diabetologia 744
Prictor M, Huebner S, Teare H, and others, ‘Australian Aboriginal and Torres Strait Islander Collections of Genetic Heritage: The Legal, Ethical and Practical Considerations of a Dynamic Consent Approach to Decision Making.’ (2020) 48(1) The Journal of Law, Medicine & Ethics : A Journal of the American Society of Law, Medicine & Ethics 205
Obura M, Beulens J, Beulens J, and others, ‘Post-Load Glucose Subgroups and Associated Metabolic Traits in Individuals With Type 2 Diabetes: An IMI-DIRECT Study.’ (2020) 15(11) PloS One e0242360
Koivula R, Forgie I, Kurbasic A, and others, ‘Discovery of Biomarkers for Glycaemic Deterioration before and After the Onset of Type 2 Diabetes: Descriptive Characteristics of the Epidemiological Studies Within the IMI DIRECT Consortium.’ [2019] Diabetologia
Shah N, Coathup V, Teare H, and others, ‘Motivations for Data sharing—views of Research Participants from Four European Countries: A DIRECT Study’ (2019) 27 European Journal of Human Genetics 721
Shah N, Coathup V, Teare H, and others, ‘Sharing Data for Future Research-Engaging participants’ Views about Data Governance Beyond the Original Project: A DIRECT Study’ (2018) 21 Genetics in Medicine 1131
Prictor M, Teare H and Kaye J, ‘Equitable Participation in Biobanks: The Risks and Benefits of a "Dynamic Consent" Approach’ (2018) 6 Frontiers in Public Health
Teare H, de Masi F, Banasik K, and others, ‘The Governance Structure for Data Access in the DIRECT Consortium: An Innovative Medicines Initiative (IMI) Project.’ (2018) 14(1) Life Sciences, Society and Policy 20
Kaye J, Terry S, Juengst E, and others, ‘Including All Voices in International Data-Sharing Governance.’ (2018) 12(1) Human Genomics 13
Parra-Calderón C, Kaye J, Moreno-Conde A, and others, ‘Desiderata for Digital Consent in Genomic Research.’ (2018) 9(2) Journal of Community Genetics 191
Brunfeldt M, Teare H, Soini S, and others, ‘Perceptions of Legislation Relating to the Sharing of Genomic Biobank Results With Donors-a Survey of BBMRI-ERIC Biobanks’ (2018) 26 European Journal of Human Genetics 324
Coathup V, Finlay T, Teare H, and others, ‘Making the Most of the Waiting Room: Electronic Patient Engagement, a Mixed Methods Study’ [2018] Digital Health
Koivula R, Forgie I, Kurbasic A, and others, ‘Discovery of Biomarkers for Glycaemic Deterioration before and After the Onset of Type 2 Diabetes: An Overview of the Data from the Epidemiological Studies Within the IMI DIRECT Consortium’
Teare H, Hogg J, Kaye J, and others, ‘The RUDY Study: Using Digital Technologies to Enable a Research Partnership’ [2017] European Journal of Human Genetics
Budin-Ljøsne I, Teare H, Kaye J, and others, ‘Dynamic Consent: A Potential Solution to Some of the Challenges of Modern Biomedical Research.’ (2017) 18(1) BMC Med Ethics 4
Forestier-Zhang L, Watts L, Turner A, and others, ‘Health-Related Quality of Life and a Cost-Utility Simulation of Adults in the UK With Osteogenesis Imperfecta, X-Linked Hypophosphatemia and Fibrous Dysplasia.’ (2016) 11(1) Orphanet J Rare Dis 160
Javaid M, Forestier-Zhank L, Watts L, and others, ‘The RUDY Study Platform – a Novel Approach to Patient Driven Research in Rare Musculoskeletal Diseases’ [2016] Orphanet Journal of Rare Diseases
Coathup V, Teare H, Minari J, and others, ‘Using Digital Technologies to Engage With Medical Research: Views of Myotonic Dystrophy Patients in Japan.’ (2016) 17(1) BMC Medical Ethics 51
Woolley J, McGowan M, Teare H, and others, ‘Citizen Science or Scientific Citizenship? Disentangling the Uses of Public Engagement Rhetoric in National Research Initiatives.’ (2016) 17(1) BMC Medical Ethics 33
Teare H, Morrison M, Whitley E, and others, ‘Towards ’Engagement 2.0’: Insights from a Study of Dynamic Consent With Biobank Participants’ (2015) 1 Digital Health 1
Ponte C, Gray D, Barrett J, and others, ‘THU0339 United Kingdom Research Registry for Rare Bone, Joint and Blood Vessel Diseases (RUDY): Analysis of the First 133 Patients’ (2015) 74(Suppl 2) Annals of the Rheumatic Diseases 318
Kaye J, Whitley E, Lund D, and others, ‘Dynamic Consent: A Patient Interface for Twenty-First Century Research Networks.’ (2015) 23(2) European Journal of Human Genetics : EJHG 141
Koivula R, Franks P, Heggie A, and others, ‘Discovery of Biomarkers for Glycaemic Deterioration before and After the Onset of Type 2 Diabetes: Rationale and Design of the Epidemiological Studies Within the IMI DIRECT Consortium’ (2014) 57(6) Diabetologia 1132
Minari J, Teare H, Mitchell C, and others, ‘The Emerging Need for Family-Centric Initiatives for Obtaining Consent in Personal Genome Research.’ (2014) 6(12) Genome Medicine 118
Melham K, Moraia L, Mitchell C, and others, ‘The Evolution of Withdrawal: Negotiating Research Relationships in Biobanking.’ (2014) 10 Life Sciences, Society and Policy 16
Teare H, Robins E, Kirjavainen A, and others, ‘Radiosynthesis and Evaluation of [18F]Selectfluor bis(triflate).’ (2010) 49(38) Angewandte Chemie (International Ed. In English) 6821
Teare H, Robins E, Arstad E, and others, ‘Synthesis and Reactivity of [18F]-N-Fluorobenzenesulfonimide.’ [2007] (23) Chemical Communications (Cambridge, England) 2330
Teare H, Huguet F, Tredwell M, and others, ‘A Convergent Approach for the Synthesis of Fluorinated Sphingosine Analogues’ (2007) 2007(10) Arkivoc 232
KAYE J, TEARE H and BELL J, ‘Consent for Data Processing under the General Data Protection Regulation: Could ’Dynamic Consent’ Be a Useful Tool for Researchers?’ Journal of Data Protection and Privacy
Schuler Scott A, Goldsmith M and Teare H, ‘Wider Research Applications of Dynamic Consent’, IFIP Advances in Information and Communication Technology (Springer 2019)
Zhang L, Watts L, Turner A, and others, ‘USING THE RUDY STUDY PLATFORM TO CAPTURE QUALITY OF LIFE OF ADULTS WITH RARE DISEASES OF THE BONE’, OSTEOPOROSIS INTERNATIONAL (2016)
‘Wider Research Applications of Dynamic Consent’, , IFIP Advances in Information and Communication Technology (Springer 2019)
Teare H, Argente J, Dattani M, and others, ‘Challenges and Improvement Needs in the Care of Patients With Central Diabetes Insipidus.’ (2022) 17(1) Orphanet Journal of Rare Diseases 58 (review)
Viñuela A, Brown A, Fernandez J, and others, ‘Genetic Analysis of Blood Molecular Phenotypes Reveals Regulatory Networks Affecting Complex Traits: A DIRECT Study’
Atabaki-Pasdar N, Pomares-Millan H, Koivula R, and others, ‘Inferring Causal Pathways Between Metabolic Processes and Liver Fat Accumulation: An IMI DIRECT Study’